About the tissue bank

The Pancreatic Cancer Research Fund Tissue Bank (PCRFTB) is the world's first national pancreas tissue bank and will accelerate research into pancreatic cancer.

The Tissue Bank is a unique collaboration between the charity, Barts Cancer Institute, Queen Mary University of London and nine key NHS partners throughout the UK, each renowned for its expertise in treating pancreatic cancer:

  • Barts Health NHS Trust (London)
  • The Royal Free London NHS Foundation Trust
  • University Hospitals of Leicester NHS Trust
  • Oxford University Hospitals NHS Foundation Trust
  • University Hospital Southampton NHS Foundation Trust
  • ABM University Health Board, Swansea
  • The London Clinic
  • Newcastle upon Tyne Hospitals NHS Foundation Trust
  • University College Hospitals NHS Foundation Trust

We hope that more hospitals will join the collaboration.

The Tissue Bank collects and stores tissue, blood, saliva and urine from people with pancreatic cancer and other diseases of the pancreas, alongside samples of blood, urine and saliva from first degree relatives of patient donors and other healthy volunteers.

While reserves are being built up, applications for samples will be invited from researchers at all the collaborating centres and those engaged in current and completed projects funded by Pancreatic Cancer Research Fund. The Tissue Bank will be open to applications from any researcher in the UK from year 3, and as stocks become sufficiently available, to international researchers.

Researchers will be able to apply to access tissues alongside detailed information about the tumour type, grade and the anonymous donor's clinical history. We anticipate that around 1,000 new patients will donate their tumour tissue to the Tissue Bank each year.

The Tissue Bank incorporates a Research & Development arm, which will ensure that it remains at the forefront of research techniques to yield as much information from tissue samples as possible.

All research data generated from the Tissue Bank samples will be fed back into a bespoke bioinformatics database and made freely available to the global research community.

If you are a patient and want to find out more about donating to the Tissue Bank, please visit our main website.

Queen Mary University of London is the sponsor for this study based in the United Kingdom. We will be using information from your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. Queen Mary University of London will keep identifiable information about you for 20 years after the study has finished.

Your rights to access change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

You can find out more about how we use your information at http://www.jrmo.org.uk.